Waiting

This friday Michael sees the Dr. who performed the surgery and we are hoping he clears him for the Cytoxin treatments. We are very anxious for these to begin and see what happens. He is trying so hard to figure anything and everything out that is thrown his way. He is such a fighter! I can't imagine what it would be like to be in his skin for this long. We believe he has had this secondary encephalitis since about January 7th when his picc line was removed. I often find myself wondering where Michael would be if he was treated right away. What if an MRI was done before pulling the picc line? The most important thing I have learned thru all of this is...Advocate Advocate Advocate! If any of you go thru a medical crisis, these are some issues you should keep in mind. You can't ask enough questions. If you are not getting an acceptable answer, ask someone else. You not only have the right to ask, but the responsibility to your loved one. The medical professionals can be wrong. Push for the tests that you feel need to be performed and don't take no for an answer. OK, I'm off my soap box now. If any of Michael's friends are considering a visit, July is open other than the 8th-10th so far. He would love more visitors. This is the #(972)838-2602 ext. 2 or ask for West House where Michael lives if anyone wants to call. The best time to call during the week is between 4:00 and 8:oo and on weekends pretty much anytime. That is it for now. Thanks for keeping up. Post from Mom