Michael is an awesome son, brother, friend, and a class act.
Loved by many, this is the story of how he will make his way back.
Sludacris
Friday, July 29, 2011
Empty
That describes how we feel. We have been with Michael day after day now for 7 months. We felt like our constant love and support would help him heal and come back, but its just not enough. He needs a facility that understands brain injury and is equipped to handle explosive behavior at times without harming him. That has already been done to him. He needs room to roam and physical activity such as a gym or rec room to let off steam when he becomes confused and angry. If anyone reading this knows of a facility like this, no matter where it is please let us know. We are at our wits end and very exhausted. In fact, I'm driving home tomorrow with Jordan and our dogs. I need to regroup and spend time with my other family members and let the pros handle Michael. Mike and I have both agreed that it is time to detach and let go. If we keep going at this pace, it will kill us. I feel defeated and like I'm turning my back on Michael, but I don't know what else to do. Post by Mom
Subscribe to:
Post Comments (Atom)
Rosi, you both have been so amazing throughout all of this and I can't imagine being in your shoes. I can understand how it would feel like you're turning your back, but you're not. You can't be what he needs if you are too run down & exhausted in every way. He'll understand that someday. I pray for you guys all the time and my heart is with you. Love you, and wish I knew of a place to recommend to you. Take care of yourself and know lots of people love you.
ReplyDeleteSturk (Loren's friend :))
Michael looks like such a joyful guy. I'm very sorry that you are going through this ordeal, and my only hope is that you all remain strong and press forward. I'm sending good vibes your way.
ReplyDeleteScott contacted one of his Duke classmates about possible rehab facilities. His friend has a specialty in neurological PT and recommended Brooks in Jacksonville, FL. He said they have a good behavioral program for brain trauma patients. he also suggested RIC in Chicago, Kessler in NJ, Moss in Philadelphia and USC in LA. I pray you have already found a place that is appropriate for Michael's needs but if any of this will help let us know and we will try to get contact people for you. Your family is always in our thoughts and prayers. Love to all of you, Barbara Kaylor
ReplyDelete7 months . . . I can't even imagine how exhausting this has been (and continues to be) for you. Please know that you are in my prayers, and I'll do what I can to help as well.
ReplyDeleteOne breath at a time. That's all you can do. You must breathe for you. Though that might seem harsh and hard at times.
ReplyDeleteSometimes it's the detaching that allows for things to come. Kinda like when one lets go of a raft and just floats in the waves.
You'll be guided just fine. Breathe and seek the comfort you need for you. :-)
Peace.
This blog is so warm and positive, I'm both impressed and humbled. Sending you all lots of love and prayers from Norway!
ReplyDeletekeep your spirits up...i am wishing for you and your family strength, peace of mind, and acceptance during this difficult time.
ReplyDeleteYou are an incredible mother and do not think for even a moment that you are turning your back on Mike. You need only to look at these wonderful pictures of him and remember that YOU allowed these wonderful times to happen. Sometimes love works in strange ways and right now, the love you can give is through professional help. I am confident that you will find the help that your beautiful son needs.
ReplyDeleteI am so sorry for the difficult time you are going through... hopefully things will start to look up sometime soon. My thoughts are with you and Mike and the rest of your family.
ReplyDeleteKnow that taking care of yourself IS taking care of Michael. Much love and compassion.
ReplyDeleteThis post makes my heart melt, you sound like such a loving mother. I wish I knew of a hospital. I will include you and your family in my prayers.
ReplyDeleteI'm so sorry to hear of what you're going through. Although I'm not sure that they have a facility themselves, you might want to contact the Institutes for the Achievement of Human Potential, based in Philadelphia, PA: http://iahp.org/Les-Instituts-pour-la-R.7+M54a708de802.0.html. They have people at the forefront of brain research; I happen to be one of their success stories.
ReplyDeleteI will keep you and your family in my prayers. Your love for Michael is palpable. May you be filled with strength and peace as you continue to seek what's best for your son.
It seems you have been a wonderful support system for Michael and I only hope that I have people like you in my life if anything unfortunate ever happens to me. You are strong people, loving people and honest people...what more can one hope to be or hope to have in their life.
ReplyDeleteYou need to take care of yourselves through this process. If you arent healthy and grounded during this time, how can anyone expect you to be of any help to Michael. Take time for yourselves and make sure you love yourselves the way you love him. I have a feeling he would want you to...
Just know there are so very many people rooting for you and supporting you from many, many miles away. Im sending you positive thoughts, energy and hope for the future!!!
Just know that you're in the thoughts and prayers of many.
ReplyDeleteSo very sorry to hear about what you and Michael are going through. Please know that you are not alone and in the most difficult moments, you are surrounded by love and prayers. I am not sure how feasible it would be for you, but many years ago, I worked on the Neuro-Psych/ Head Trauma unit at Johns Hopkins Hospital. Perhaps they could help you with some direction. Thinking of you with love from England.
ReplyDeleteAs a nurse and a mom I cannot imagine how tired all of your physically, emotionally, financially. I want you to know that each of you are loved by so many and that even though some days that probably just doesn't seem like enough-it will be. Rest, rejuvenate, care for each other and pray for peace. Keeping you in my prayers as well.
ReplyDeleteYou're human...it's all you can do. The support and love you have shown and will continue to show will reap benefits, but it's OK to be worn out dejected; just know there are people pulling for you guys and praying for your family (Michael included obviously!) - hopefully these and other gestures will help you "recharge" fully and quickly. Here's to finding the strength to stay strong!
ReplyDeleteGod bless your guys! - Jonathan
I wish you courage and strength and comfort.
ReplyDelete(((hugs))) to you all,
Lori
I pray that this time away brings you peace of heart and mind and refreshes you body and spirit to continue to help your son heal in every way you can. I can't imagine the emotional strain that you must be under, but please remember that you can't give all of yourself away, even to your kids. You will be a better caretaker of Michael because you are taking the time to take care of yourself.
ReplyDeleteIt is obvious how much love everyone has for Michael. May you all be blessed with renewed hope each day!
Michael seems like a special guy and I will be keeping him in my thoughts and prayers!! I hope that you are able to find a facility that is willing to work with him!
ReplyDeleteJust wanted to send you a note of love and encouragement in Yahushua's (Jesus) name. Praying for the healing of this great young man, and that your family will not suffer any financial or emotional hardship during this trial.
ReplyDeleteBe blessed!
I am sorry for what you are going through. I hope things get better and that you are able to find the best place for Michael. In the mean time, keep being strong and stay by his side, helping him as he needs you. You are such a supportive family. I'll be raying for Michael and your family.
ReplyDeleteLove,
Carol
Healing yourself allows you to love and nurture and deal with the grief you are experiencing. It's not selfish, it's not abandonment, it's not giving up. You are of no benefit to your Son, if you aren't good to yourself. My prayers are with you and your family as you journey on this path of healing.
ReplyDeleteA hard turning point, no doubt ... but you are wise to listen to your bodies and your hearts. You have done and will continue to do your very best for Michael. But you're no good to yourselves or to him if you're burned out, stressed, exhausted. Take care of your selves, breathe, and let things unfold ... Best wishes from Canada.
ReplyDeleteI have two sons and cant imagine what you are living through. My thoughts, heart and prayers are with you and Michael.
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteYou guys are in my prayers.
ReplyDeleteI am so sorry for the frustration and fear that you and your family must be feeling right now. Michael looks like an amazing person and to see him suffer has to be taking it's toll on you. Don't agonize over taking some time away and being with other loved ones. You need it and they need it. I will keep Michael and your family in my prayers.
ReplyDeleteA friend of mine has a son (named Michael, oddly) who just suffered a Traumatic Brain Injury and they fought like heck to get him to Baylor Rehab in Dallas. They are very pleased with his therapy and progress.
I pray God's blessing for Michael and your family.
~Erin Patrick
Youre an amazing inspiration to other mothers out there... you have already been through and loved through so much... youre not turning your back on him... you are supporting him through what is next... He knows you love him, anyone reading this does :) Prayers for you and yours
ReplyDeleteWishing you and your family much strength. You are in my thoughts and prayers.
ReplyDeleteThank you for sharing your emotional journey. Know that there are people from all over pulling for you an your family. I wish you all the best for Michaels recovery!
ReplyDeleteYou all are fighting so hard for Michael, no one can fault you for needing a break! You can't keep up the momentum for him without allowing yourself some rest. I hope and pray that you all are able to find a rehab suited to Michaels needs.
ReplyDeleteI can't even imagine how difficult this situation is for your family, but I want you to know that you have the support of countless strangers thanks to [Love Bomb]. I'm one of them.
ReplyDeleteBest wishes and prayers coming your way! Perhaps the Rehabilitation Institute of Chicago might be able to help, either at their facilities or perhaps a referral, they are a fabulous group of people!
ReplyDeleteThe Bible says in Matthew 11: 28 to 29 (NIV) Come unto me all who are weary and heavy burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble of heart, and you will find rest for your souls.
May God's blessings be upon you and your family in these dark times and bring you healing and comfort, in Jesus' name I pray.
I wanted to send you a note of encouragement and support. I can only imagine how hard this must be for you and your whole family. Please take care of yourself as well for your sake as well as Michael's. You will be in my thoughts and I will pray that you find the facility that is needed for your family to grow stronger.
ReplyDeleteI don't know if I am able to offer words that will bring you any sense of comfort and it may sound hokey but I truly believe God brings people to the tough situations that can handle it with grace and love, and I believe you can and your family as well as your son can persevere. In these tough moments I hope that you all find support and love you need and can continue to give it to each other. All my love and best wishes.
ReplyDeleteMany prayers for you and your family as you're going through this difficult time.
ReplyDeleteI am sorry you are going through this. Parents experience more joy and more pain than anyone. Don't forget to take some guilt free time for yourself.
ReplyDeleteThis is only a temporary trial from God he will get better remain having the strong faith and not doubting that he will get better soon. I know the rush and the uncomterble emotions you may feel but know that everything will turn out for its Good. My prayers are with you. I hope that these links can help you some how to stay strong.
ReplyDeletehttp://www.joycemeyer.org/articles/ea.aspx?article=the_cause_and_cure_for_worry
http://www.youtube.com/watch?v=bfKn92klPeU
I'm praying for you and your family! It's amazing to think of all the effort you've put into make sure your son is well taken care of. It must be incredibly hard to do all that you can and still have to give more after that. You are an inspiration. Please keep fighting for your family!
ReplyDeleteI am so sorry to hear of what all of you are going through... My thoughts are with all of you... Remember to take care of yourself but never give up hope that Michael will recover.
ReplyDeleteI can't imagine what you and your family are going through. Just know that whatever you need to do and decide to do will be the right decision. Keep up the faith. Keeping you and your family in my thoughts and sending lots of love and prayers your way.
ReplyDeleteBREATHE!!! By taking some time to step away, you are actually allowing yourselves to become stronger so that you will be able to continue supporting Michael. It's OK to renew your spirit, so that YOU can go on. Give yourself permission to take a little break. Moms are the worst at doing that. It doesn't mean you will forget about your son; you will pray, you will hope, you will get stronger... all for him!! Believe in the power of God, though i am sure your faith has been shaken by this. Hope is the mainstay... don't ever let it go!! Peace to you all!
ReplyDeleteI'm thinking of you guys. This must be the hardest thing to ever go through. Not only having your son be so confused at what's happening, but also to not have someone who can help. I love your strength. Keep your head up, and I'm praying for you.
ReplyDeleteMichael is so blessed to have you in his life. Hang in there and take care of yourself! I hope that you are able to find the right kind of facility soon that can work with you and him until he is able to come home safely. May the universe smile down on you today.
ReplyDeleteMichael-
ReplyDeleteI want you to know that we are here for you and your family! You are loved and prayed for. Take each day one at a time, things will get better. Never ever give up.
Sincerely,
Mark (bluebuddha1961@gmail.com)
Don't give up. Michael is so lucky to have a family this willing to take care of him. You're so incredibly strong and I'm sure that even if it takes a long time, things will work out as best they can for Michael and your whole family.
ReplyDeleteI totally understand how you are feeling, my dad had encephalitis too. The mood swings were really ackward and really hard to control. Just be patient, and understand that its just the disease that is making the person change. I hope everything gets better, good vibes from a lovebomber.
ReplyDeleteAmber.
Joyce Meyer she is an amazing preacher and I listen to her everyday especially during my trial in life it help me stay calm and keep my faith. Hope this will also help you as well.
ReplyDelete(Don't Panic its just a trial)
http://www.youtube.com/watch?v=WzvAcInSDts
(The Shield of Faith)
http://www.youtube.com/watch?v=QjE7JwC2stE
Use this prayer it help me way beyond my expectation and I know it will for your family. Habakkuk 3:19
What a wonderful family Michael has! Your dedication is amazing. I can't imagine how difficult this is for you, but know that your efforts inspiring. It's healthy to take a break for yourself and regroup. When you have more energy, you have more energy to give. Peace.
ReplyDeleteSending you positive thoughts for this difficult time you're going through!
ReplyDeleteTake good care of yourself!
Reading this post makes me realize how achingly desperate you are to find something that will help Michael. I know you are being crushed by the weight of all this, but he will always remember your dedication to helping him.
ReplyDeleteI am praying for your family. I can't imagine the stress! I know things will get better and I hope it happens soon.
I'm a therapist, and I have worked in the past with a program called Texas Neuro Rehab. While they focus on children and adolescents, someone there may be able to point you to a TBI program for adults. Feel free to email me if you need more resources - I'm not a TBI expert by any means, but I know of a few places that help with finding a suitable program. Good luck!
If the positive thoughts and prayers of hundreds of people can change anything for the better, then you have much to be hopeful about. We are holding your family in our thoughts.
ReplyDeleteSending you and your family strengthening vibes from Virginia! --Emma
ReplyDeleteYou and your family are in my thoughts and prayers...keep the Faith!
ReplyDeleteGod Bless!
Sending you, Michael and your family love and healing light. Please remember to carve time out for yourself each day - even if it's for 10 minutes, so you can recharge your loving spirit.
ReplyDeleteTake care :)
A dear friend, just last week, spoke to me in words that I had said to her many years ago when she and her family were going through a very rough time...She said, "Didn't you tell me that I must take care of myself first or I won't be able to care for anyone else? And to fill up your own "spiritual account" or you won't be able to make anymore "withdrawals"... Weren't those your words?" I had to admit that they were. So I now say, may your spiritual account be filled today with the love and prayers of the many who are sending you "deposits" of caring. May they guide you and abide with you each day...one day at a time. Thinking of you and your family.
ReplyDeleteLove and best wishes from the Great White North! I hope you and your family will persevere through these tough times. Keep looking for the ray of hope in a dark sky!
ReplyDeletePlease know that allowing the professionals to handle Michael while you take care of yourself and your family is the best thing you can be doing at this point. You can't let his disease kill you, because then no one can fight for you. I hope you all find something that brings you peace and can use that as motivation to get through the hard times. We are here, thinking of you, sending you best wishes and so much love in hopes of healing for Michael and everyone that loves him.
ReplyDeleteYou and your family are in my thoughts and prayers. Please do not be hard on yourself-you are an amazing person who is doing her very best in an incredibly difficult situation. You have to take care of yourself so you can be there for Michael. You are an inspiration.
ReplyDeleteThinking of you and your family and praying you find a facility equipped to handle Michael. As a mother and grandmother, I cannot imagine being in such a difficult situation. Love {Bomb} to you!
ReplyDeleteYour son is a lucky man and you are a wonderful example of what family is all about. You are doing the right thing. You can't help your son if you are worn down or worse unhealthy. Sometimes when we are the midst of the hardest time, it is hard to see the why. Just know that now there will be hundreds of people praying for your sons recovery and your families strength.
ReplyDeleteAll my best wishes and prayers go out to your son and your family. He sounds like an amazing individual, and he's very lucky to have a loving family such as yourselves. God bless.
ReplyDeleteWhile I may not know what you are going through, I am praying for you and your family to have the strength to endure this season of your lives. Know that I am praying for Michael, that the doctors would have the wisdom and knowledge that would lead them to a solution. My mom is always reminding our family when troubles come, that, 'this too shall pass'. One day, this will all be a memory! Until then, know that I am praying for you!!
ReplyDeleteMichael,
ReplyDeleteI know brain injuries are so difficult to recover from because it feels like you have no control of your emotions. I've known people with injuries like yours, including my mom (stroke), and you will make great improvements. Be patient, forgive yourself, and remember that your brain is an organ like any other part of your body. It takes times.
To Michael's family,
You are amazing! You are supportive! And you are such a great advocate for him! I can't even begin to imagine how hard this has been on all of you. Please know that someone over in Seattle is praying for you and your family.
Your love and care for Michael comes through strong. Know that you are loved.
ReplyDeleteI can't imagine how difficult this must be for you and your family. Right now you're doing what you must, saving some of that time and energy for yourself. If you're not strong in mind and body you won't be able to be strong for Michael, so I hope you won't feel guilty for this.
ReplyDeleteYou're a strong person and an inspiration, he's very lucky to have you in his life.
Prayers and best wishes from Toronto.
I found out about you and Michael from Love Bomb.
ReplyDeleteI believe prayers make a huge difference and want you to know that from here in Arizona I am praying for you, Michael and your family. I can't imagine how difficult this is for all of you. Remember to take care of yourself and know that you are in the thoughts and prayers of many. Amanda
Holding you all in my prayers in the Glass City.
ReplyDeleteI can't imagine what you are all going through right now. What a difficult situation. I wish I knew of somewhere that could help you, so I'm sending prayers that you will find somewhere soon instead.
ReplyDeleteWhat an amazing job you are all doing as a family supporting each other the best you can in the circumstances. Enjoy your rest time. I'm sure you need it. It's not easy caring for someone when everyone else turns their back. Just know we are sending our love and prayers to your family from across land and sea in the hopes that the good prayers will answer some of your problems soon.
Take care.
You are an amazing family! There is very little more you can possibly do for your son, brother, and friend. I know that God, along with so many men and women, truly appreciates the beautiful gifts you are giving Michael, and, like everyone else said, there must also be time to take care of yourselves. Thinking of you and praying for Michael's recovery, from Washington State.
ReplyDeleteI understand what you are all going thru. My sister has liver disease which causes her to experience episodes of Encephalopathy - severe mental confusion which causes her distress, anxiety, aggression, paranoia, and more. When she is in that state it is incredibly difficult for our family. I don't have any answers for you other than to tell you that you MUST look after yourselves. Know that you are doing the best you can for your child, but you also must stay healthy in mind, body & spirit - for Michael and the rest of your family. Thinking and praying for you all.
ReplyDeleteMy heart goes out to your entire family during this difficult time.
ReplyDeleteI am sure these past seven months have been very trying emotionally and physically. It's not only important to take care of your son, but for your family to take care of themselves. You need to be strong to be strong for someone else. Take time for you, and do it without guilt. Fill up your cup, so you can pour some into his. You are not turning your back.
My thoughts and prayers are with you.
God speed,
Meg
Support and encouragement going out to you Rosi and warm healing thoughts for Michael and wishes for a speedy recovery. Stay strong until the day this is all behind you and your family. Hugs.
ReplyDeleteYou're a strong and amazing mother to have worked so hard for so long. I'm sorry that you haven't found a home suitable for Michael yet~ I'm sure one will be shown to you soon (: I have a suggestion, and I don't know how helpful this will actually be:
ReplyDelete(http://almosthomekids.net/) AHK gives respite and transitional care to kids with special medical needs, so it would allow you to take a well-deserved break, if you're in the area. Their main home is in Naperville, IL, with another location coming soon in Chicago.
My thoughts and prayers are with you. Never give up hope; a way will be shown to you in time.
I have faith you will not allow your family to be defeated by illness or injury. Caring for yourself and your husband is the most important part of caring for your Son, without you he has no one to lead him back to the light.
ReplyDeleteBrain injury's are hard to deal with as a family, because sometimes they are a different person once they return from the brink. Therapy or a Support Group may help immensely.
Trust in Love
I've read some of your previous posts, and my heart just aches for you all.... That's awful about the facility making you have to find another place for him, and with just a week's notice at that, too. It's my fervent hope/prayer that something better will present itself soon for you all.
ReplyDeletePlease try to take care of yourself and know that it's okay to do so (think of that axiom of putting on your own oxygen mask -- one needs to do that to be able to help others).
Also, please know that you have lots of people who are praying for Michael and your family during this trying time. I wish I had some knowledge of a facility or something.
Your love for your family and your inner strength (for you all have been very strong!) is beautiful. You all are in my thoughts and prayers.
(((HUG)))
I started reading your blog from the beginning. What a journey of love and frustration. Through it all you have been so strong. It is time that you take some time to refresh and rejuvenate. In Beth Moore's "Loving Well" she reminds us that loving well means drinking deeply from the Loving Well. It is so hard to do that when you are constantly tired and overwhelmed with the day to day grind of shouldering a burden like this. You need to take time to drink deeply of the Loving Well, so take time to be with Him. Let Him fill you with His love, know that you and your family are precious to Him. Jesus is holding you all in the hollow of His hand, no matter how it may feel right now, for you are His beloved. Rest in Him, drink deeply of His love, and soak in the prayers and best wishes that are being sent your way today. I pray that our Father will give you peace and comfort, rest and strength, and the desire of your heart. I pray for Michael's complete recovery and for the right place to open for his care. In His love, Judy
ReplyDeleteMy thoughts and prayers are with you and family. My brother has a brain injury, so I know how hard this is.
ReplyDeleteSending lots of love and prayers your way from Love Bomb. I cannot imagine how difficult it must be for Michael and your family. Reading your blog, I see your strength through the light of God. He will help you though this. Pray to Him for help, guidance, support, and to help carry that heavy burden. My 39-yr old husband (I am 32) recently passed away as a result of melanoma skin cancer, and in the end it affected his brain and it was so hard to see him so confused and not even recognizing our young 2 yr old son. I am lifting Michael and your family up to the Lord in prayer.
ReplyDeleteWarmly, Roxanne
Your family is beautiful. I have been the support for several people in my family who have had medical issues (some more permanent than others). And I get the frustration and love and guilt.
ReplyDeleteYou're all in my thoughts.
You are NOT turning your back on Michael. Looking for the right facility means you will have greater capacity to love and care for him. You're an amazing Mom and an amazing family. You guys will be in my thoughts... xo
ReplyDeleteSending love and light to help you get through this difficult time, and to help Michael recover fully & fast. DO take time out for yourselves (and don't be guilty about it), it will recharge you so you can be stronger for Michael. Holding Michael, you, and your family and friends in the light.
ReplyDeleteI pray for the time when this is all behind you and you can look back and say that you were strong and are doing all that you can. There will be brighter days. May God bless your family.
ReplyDelete*HUGS* *HUGS* and more *HUGS* You are an angel!
ReplyDeleteSending you love today and every day.
ReplyDeleteI am praying and wishing all the best the medical world has to offer for you and your family. Michael's story brings one of my favorite quotes to mind "I dont need easy, i just need possible." Never ever give up. Never. God Bless.
ReplyDeleteWhat a difficult time this is for you and your family, but please do not feel as if you have given up on your son.
ReplyDeleteWhile this disease manifests itself in your son, your entire family is suffering as well and must take time to heal, provide comfort, regroup and then provide your son with support.
Know that there is an army of people out here praying for you, your family, and your son. If positive energy alone could heal, we all would wish for your son a fast and powerful healing. As it isn't we wish you peace and comfort and blessings.
Mothers always have the hardest job but you are doing yours wonderfully, to the fullest extent you can. Through this blog it is obvious that your entire family has stepped up to help Michael. I wish you luck and happiness because you are all working so ridiculously hard, you deserve something in return.
ReplyDeleteAlice
Sending lots of love, good thoughts, and prayers to you and your family. Being a parent is hard and making tough decisions for the sake of yourself and your child is hard. You have to keep telling yourself that you really are making the best choice for Mike and that you have everyone's best interests in mind. As long as you love him, you will never be turning your back on him.
ReplyDeleteThe web of prayers holding up your son has been dramatically strengthened today. Please feel the strength and allow that to help you let go for a bit without guilt.
ReplyDeleteWishing you and your family love and all the strength you require to keep putting one foot in front of the other during this very difficult time. As a mother myself, I only imagine your sorrow and feelings of despair. Please know that there are others out there sending love and positive thoughts of support your way.
ReplyDeletesending you positive thoughts and prayers.
ReplyDeleteI am thinking of your family and holding you all in my head and heart. You are not alone!
ReplyDeleteTake time, breathe, pray. I promise - I swear - things will get better. Sending love and best wishes <3
ReplyDeleteYou are all so brave and strong to keep going through such hardship. It's very hard now, but you can get through this and we all believe in you. Stay strong; we're all behind you. Sending you lots of love, positive thinking, and prayer.
ReplyDeleteI'm so sorry your family has to go through this. Thank you for sharing your journey - you will touch many lives. You will get through this; keep going.
ReplyDeleteMichael is in my thoughts and prayers.
ReplyDeleteI'm thinking of you all and hoping for a full recovery for Michael. Take good care of yourself.
ReplyDeletexoxo
As someone with a chronic illness for the last five years, I recognize the emotions that you are feeling right now -- the anger, the frustration, the helplessness. I hope that you are able to find the help that you need, and in the meantime, I pray that you'll have the strength to meet each day. Just keep swimming, it's the best you can do, and it is enough.
ReplyDeleteAfter sitting down and reading through this blog and your journey, I am at a loss for words. I cannot imagine what you are all going through but I am humbled and moved at your strength and love and faith. Please know and feel that there are many people out here in the world that are praying for you and sending you tonnes of love and light. May Michael's recovery pick up and begin moving forward with speed and strength.
ReplyDeleteBlessings.
It's devastating to hear what has happened to your son and, in turn, your family. Still, I believe there is hope for all of you. Though I don't know of a good facility that could meet Michael's needs, I feel sure that soon one where your son can be cared for properly will be found. I will say a prayer for you and your family. Remember that many are rooting for all of you: friends, family, and even strangers. You are loved.
ReplyDeleteAs so many have already said, you can't take care of Michael if you don't take care of yourself. You are all in our hearts and thoughts as you go through this tumultuous time. Remember to breathe and hold on to the love that surrounds you.
ReplyDeleteYou and your family are so strong to have stayed by his side and support him. Just because you leave for a little bit to regroup yourself does not mean that you are being selfish or turning your backs on him. You have all the prayers and support from strangers, including myself. I hope for all the best for all of you.
ReplyDeletei know loren from WEE and have been reading these posts periodically. there are no words i can offer you, but i have been praying for michael and your family. just know that you're not alone or forgotten.
ReplyDeleteA true tribute a family's love and strength for thoses they love. God bless and many positive thoughts are sent your way as you read this.
ReplyDeleteKnow you are not alone in this journey, kept company in the thoughts and prayers by many. To quote Rev Run today: "Don't believe in miracles, depend on them!".
ReplyDeleteMassive love, peace and healing to all of you in these difficult times.
ReplyDeleteThank you for sharing the story about your son and his personal struggles & yours as his support. Praying for answers and healing for you all of you
ReplyDelete"We felt like our constant love and support would help him heal and come back, but its just not enough."
ReplyDeleteIt might not be enough, but even if he has everything else, without his family there to help him, he's gonna struggle. It feels hopeless, but he needs you now more than ever.
I can understand the need to put some distance there, and I realize in order to look after him, you gotta take care of yourself as well. But, please don't give up on him entirely. No matter what, please don't give up hope.
I'll be praying for you and your family <3
My heart breaks for you. You've been incredibly loving and strong and are very understandably feeling exhausted. You and your family will be in my thoughts and prayers.
ReplyDeleteWishing you peace and strength and sending you lots of love and (((hugs))) from Colorado Springs,
Deb
You have all shown such courage and love during these difficult times, and time to regroup is to help keep you strong. Much love to you all.
ReplyDeleteI can't imagine going through something like this as a mom, as a friend, sister, or brother. I can't fathom the pain that comes from hope being shattered again and again.
ReplyDeleteWhat's been said above is exactly right though, you can't help him if you don't first help yourself. You can't love him, if you don't love yourselves first.
He'll get through this, from the sounds of it, there are few out there as strong as he is...
Praying and thinking of your family, and wishing you all the luck with a new facility.
-Nomz
PS- NEVER feel guilty for taking a breather and regrouping. <3
As a mom currently dealing with a grown son with mental health issues, I understand the constant need to support and then retreat. We can only do so much. Then we must pull back and regroup for our own mental health. Our issues are not nearly as devastating as yours however and you have my utmost respect for all you are doing for Michael.
ReplyDeleteI am sending healing vibes your way and hope that Michael heals and returns to his former self. Hang in there.
My heart goes out to your family and to your Michael. I am so sorry you are all going through such a scary time in your lives, and I hope and pray that Michael is able to recover and live a happy and healthy life that he deserves. Please take care of yourselves. <3
ReplyDeleteI will keep you in my thoughts and will be hoping for great recovery for Michael. You have worked so hard to get him this far, with your help he will recover as much as he is able.
ReplyDeletePlease make sure you take time for yourselves as well. You need to be strong and healthy for the rest of this journey. Take time to go on a date, have a massage, or even a really good sleep-in. Whatever you need to recharge your batteries.
You have great resources and therapies available to you and I am sure you will take full advantage of them. Please also consider some alternative treatments (naturopath, accupuncture, etc.) as they may be able to provide some relief for some of Michael's symptoms. Recently I have suffered a (comparatively) minor brain injury and found that the treatments I received greatly helped my recovery. These treatments provided me with relief from some symptoms and allowed me to feel more like my old self again, which has relieved some of my anxiety surrounding my injury and in turn, helped me to heal. Even if you don't believe in these treatments they can only help. If the only benifit you see is some relaxation and stress reduction it could be helpful to Michael.
I will keep you in my thoughts.
Sending lots of love and good vibes :) Things will get better! Stay strong, you are so inspiring!
ReplyDeleteYou can overcome anything! Believe in yourself, and you will go farther than you could have ever expected!
ReplyDeleteDon't feel guilty for taking a break. It will be good for all of you and will help you find the strength to carry on. You are all in my thoughts and prayers.
ReplyDeleteWow, reading your post I can feel how hard it must be for your family to go through this time. I thinking some detaiching is necessary: you need to be strong and in order to do so, you need time to rest and be calm. I'm sending you all my love so that you guys can get past this as soon as possible and stronger than ever. Lots of love & hugs.
ReplyDeleteDo not lose your inward peace for anything whatsoever, even if your whole world seems upset. --- Saint Francis De Sales
ReplyDeleteThis sounds like an incredibly difficult time, but all you can do is the best that YOU can do; even if if means taking a step back to compose yourself. There's nothing wrong with that, and you shouldn't feel guilty about it. You can only give Michael your best if you are at your best. I believe that with love, anything is possible. I'm sure you'll find a place that will understand his injury and treat him with the love and respect he deserves; after all...his outbursts aren't his fault. It must be really scary for him to be so confused. I hope that you and your family have all of the love and support you need. All of you. Sending good vibes your way:) Peace and love.
I work at a dayhab, where we assist adults with disabilities. The people we work with have myriad different issues. We help them learn to read, write, learn math skills, exercise and healthy eating, and most importantly, how to control behavioral outbursts. I do not know if that is what you are looking for, for Michael. We are CPR and First Aid certified. We take classes in delegated nursing also. Just a thought.
ReplyDeleteI'm not sure where you live, and how it is set up, but if you were to contact your county board they would be able to point you in the right direction.
I understand completely how hard it is to help someone like Michael and how frustrating it can be for all of you. Don't give up hope. And never feel guilt because you are doing the best you can with what you have. I hope you find help for him so that he can get back to his life.
Many blessings to you and your family...
Your family will be in my prayers! Stay strong, lots of people will be thinking of you!
ReplyDeleteI can't begin to imagine what it must feel like to know detaching from your son is better for both of you. What incredible strength that must take. We'll be praying for you and your family, and especially for Michael's recovery. Here's sending love your way!
ReplyDeleteYou are a brave warrior. Much love, Sarah.
ReplyDeleteThinking of Michael and your family. I'm so humbled to see such strength and determination, keep your hope alive. You are all in my thoughts and prayers, sending you love and peace.
ReplyDeleteI can't ever imagine the difficulties and pain your family must be going through. I send all the support and love possible. When dealing with trying times try to see the boy your son was inside him.
ReplyDeleteI am praying for Michael, for his frustrated heart and for the rest of yours, his family's hearts. You are all being prayed for tonight by a lot of strong people. I'm honored to be one of them. To Michael's Mama - I so strongly affirm the love you have for your boy, and am proud of you. Take heart, dear family.
ReplyDeleteI just wanted to send some love and encouragement to your family. I have and will pray for Michael and all of you. Michael seems like such a strong person, so does your entire family. My family recently watched my youngest brother who just turned nineteen go into full psychosis, its difficult and heartbreaking to watch such a strong person go through weak times of confusion and pain, but he came out of it, thank you Jesus! We take it a day at a time now. Please know that the strong, witty Michael that you once knew is still there and still very much loves you :) I pray for peace and healing for you all. Even though it seems so very difficult right now, the Lord loves you, he really does, and he really loves Michael, and I thank him for designing each one of you to uniquely love and support one another in your strong family. God bless you all :)
ReplyDeleteI hope some of these kind words have helped you. I do keep thinking that you might consider contacting a reporter...they might get the word out in such a way that you could find a facility that fits better.
ReplyDeleteYou know those friends who've said to you "let us know what we can do to help"? Ask them to do this...contact reporters, congress people, the AMA, churches, anybody they can think of. But let THEM do it while you rest and re-group.
Thinking of you and your family. Stay strong and take care of yourself so you can take care of your son. Sending prayers your way.
ReplyDeleteI'm sorry your family is going through such a difficult time. Sending love and prayers from the UK x
ReplyDeleteStay strong and keep your faith. Taking time to make yourselves stronger will only help Michael in the long run, do not feel guilty for that, you are doing what is best for him. Sending your family positive energy and prayers for a solution, take care.
ReplyDeleteRosi,
ReplyDeleteI pray your emptiness will be filled with the love being poured over you here today and every day. Know your best is more than good enough.
Best to you and your family!
Tina
*sending hugs and fond feelings*
ReplyDeleteYou can only go as fast as you can go -- don't be ashamed that you're not an infinite creature.
I can't even imagine what your family is going through right now. It must be incredibly difficult. I'm so sorry for what has been happening to Michael, and I can only offer my genuine belief that every trial will make his recovery that much sweeter. Your dedication is awe-inspiring and wonderful. I hope you find a place for Michael soon, and I wish you the best of luck.
ReplyDeleteI am so sorry to hear of the struggles you and your family have had over these past 7 months. I cannot imagine your pain, or heavy hearts. Stay strong, but know it's ok to cry weakness. Strength will come.
ReplyDeleteYou and your family seem to be staying really strong for Michael! My heart goes out to you and hope that you can gain strength from those around you and the people following your story.
ReplyDeleteYou can't let yourself feel guilty. You need time to regroup and recharge. You will be stronger for it. You need to take care of yourself to get through this. You and your family are in my thoughts and prayers. Stay strong! Michael is very fortunate to have parents like you!
ReplyDeleteSending hope and well wishes to you and your family. And prayers for Michael's recovery.
ReplyDeleteI'm sending my good wishes to you, your son, your family, and all his friends. Keep hope strong -your steadfast courage is amazing and inspiring. May you all be healthy and happy.
ReplyDeleteMany blessings to you and your family. Stay strong and positive, all will be well.
ReplyDeleteHang in there! You are in our thoughts and prayers and we are just amazed by what you and your family are doing in this stressful time. Your spirit and steadfast faith in Michael is truly inspiring! Keep it up and we will keep thinking of you!
ReplyDeleteThe Schmidt Family
Hang in there! Keeping you all in my thoughts and prayers!
ReplyDeleteStay strong. Reading through this has inspired me beyond what words can convey. You and your family are so, so strong and I could never imagine the strength it takes to get through every day. I will keep your son in my thoughts.
ReplyDeleteTo Michael's Mom - you are a courageous and brave woman who defines the word selfless. Please trust that taking some time for yourself does not take away from Michael. It allows you to regroup and recharge for the days ahead. I hope you find a facility that can truly help Michael and that your joy and light returns. Blessings to you all.
ReplyDeleteWhat a scary, awful time for you, Michael, and for your family, too. Sending Texas-sized love and prayers for the best possible outcome for all concerned. I cannot imagine the frustration and fear - I know it's often harder to be the loved one of someone going through such a time. Be gentle with yourselves, and know that people you don't even know are on your side.
ReplyDeleteI don't know how to express what I am feeling right now. I am a mom. I am sending all the love I can, knowing that I would need it desperately were I walking in your shoes right now. My heart goes out to you, one mother to another.
ReplyDeleteMuch Love is in the air, ... Reach out, grab hold, and don't let go!
Don't ever feel that taking time for yourself and other family is selfish. Michael needs you to be at your healthiest. There are so many people thinking of you right now and praying for Michael and for your family.
ReplyDeleteMy heart is broken for you and your family. I hope you are able to find a facility (soon) that is able to care for your son and ease the pain you are all going through. Many prayers and well wishes are being sent your way. xoxo
ReplyDeleteWhat an incredibly frustrating and emotionally difficult journey you are all on right now. Praying that you will find an incredible facility that will be equipped to help Michael in his long recovery. Even more so, praying for you all, his family, that you'll find the strength and grace to keep moving and searching out solutions that will help Michael find his way back. Your strength and devotion in this journey so far has completely touched my heart. Sending you hugs from a stranger in Wyoming!
ReplyDeleteGod Bless!
Please don't feel you are turning your back on Michael. You are restoring yourself so you can continue supporting him through this arduous journey. Michael needs you at your best to help him, and you can't do that if you are exhausted beyond your limits. Have faith that many people love you and your son and your family, and that prayers and good wishes are focused on each of you. God bless you.
ReplyDeletesending love and prayers your way
ReplyDeleteYou have shown so much love and support for Michael and it is so important to receive that for yourself as well. Please know that you are not alone in this. I truly wish I was there to help. In the past I worked with people who were going through similar things as Michael. There is such a special place in my heart for them and their families. Know that so much love is coming your way...all the way from Bali. You are so very loved.
ReplyDeleteMy thoughts and prayers are with you. Sending you love and light. xo
ReplyDeleteI have posted to Twitter and facebook. (i have friends working in Neurology/rehab (but for Pets!)
they may have contacts at U.S. Universities though.)
I will be praying for you all. Keep strong and courageous. You are all very brave and loved.
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteSending you lots of love and light from Singapore! The dawn always comes right after the darkest hour of night. It may seem bleak now but I'm sure that things will get better - the wait can be annoying, but everything in its own time. Most importantly, don't give up hope! x
ReplyDeleteIt's so hard to deal with this sort of disease, and you really shouldn't feel guilty for reaching this point. Your love and support has surely helped more than anyone will ever know.
ReplyDeleteMy family and I will be praying for your son's full recovery. You are a great mother who obviously cares deeply about her son. Keep your head up high and never stop believing.
ReplyDeleteYou may feel defeated, but I think there might be a reason you the recent facilities aren't working - they're pushing you towards other opportunities and giving you a chance to find somewhere even more suited to help you and your family.
ReplyDeleteI pray for your son's recovery, and even though we don't know each other, you have my support and care.
I am so sorry to hear of all that you are going through. I am sending lots of love your way and a deep hope that Michael will fully recover.
ReplyDeleteI don't know much about their programme, but I know someone who was at the Shepard Centre in Atlanta and I know that they accept patients with encephalitis in their inpatient programme. I don't know if you've talked to them, but perhaps they could offer some help...
My heart ached as I read your story and I hope that a new, much more beautiful, chapter will be opened soon.
Your whole family are in my prayers. I wish you all the best and a bright future for Michael! xxx
ReplyDeleteDo not loose faith in God's healing power. It is on His time, not yours. Just when you think you can't go on much longer your life will change. I have had it happen to me. I will pray for all of you and especially for your son's healing. I can not imagine your pain but know you are not alone. Your hand is being held right now. May God bless your family and keep them safe.
ReplyDeleteMy thoughts are with you. Sending love.
ReplyDeleteKeep strong, the world is on your side. Much love <3
ReplyDeleteSometimes, no matter what we do it doesn't feel like enough. Its those times when leaning into your support system, take some time to fill up the tank, and take a lot of deep life giving breaths. So much love and healing vibes being sent to you, your family and Michael.
ReplyDeleteSending thoughts and prayers your way at this difficult time.
ReplyDelete*HUGE HUGS* It has taken such courage to stay with him, and now it is taking even more courage to say, 'I need to step away now,' when you love him so very much. You all are so, so brave - and such an inspiration and model of love for the rest of us.
ReplyDeleteTake your time to cry, to breathe, to let those who love you support you, to reconnect, to find your strength and fill yourself up again.
And know that the love, healing thoughts and prayers of so many of us out here are with you.
I'll light a candle for you all. Love, prayers and blessings to you all.
I'm so sorry for everything you are all going through.
ReplyDeleteReading your story breaks my heart! I wish there was more I could do other than leave a comment on your blog - but I want to let you know that my thoughts an prayers are with you! I know this is a difficult time you and your family are going through, but I know that God is there beside you the entire way, and I hope that he gives you the strength and guidance that you need. If you ever need anything, please feel free to shoot me an email - even if it's just to vent frustrations. We are all here for you!
ReplyDeleteI was so sorry to hear about Michael. It truly hurts to read that you're all going through so much and that there isn't even proper help for him. All I can do now is hope for you, so I will! Stay strong (:
ReplyDeleteYou really are an inspiration to everyone. Just know that there are hundreds of people thinking about you everyday, and you could not be supporting your son more.
ReplyDeleteBest wishes,
Zoe
Keep fighting the good fight. Never feel selfish for keeping your strength and wits intact. I hope & pray that soon you will be able to find the help you need. All you can do is your best and you sound as if you are exceeding said best by leaps and bounds. I'm sending good vibrations & heaps of hope for Michael.
ReplyDeleteI watched an amazing movie last night called Soul Surfer. A young woman lost her arm in a shark attack, and was having a hard time dealing with the situation. She talks with a friend about needing a new perspective, that she's (literally) too close to the situation. Take your time at home and know you need that break, that sometimes being too close to the situation can make us lose sight of the positives in life. I will be praying that Michael finds peace and a place that will be a perfect match for hi,
ReplyDeleteDuring one of the worst times in my life, my dad left a simple note for me on a napkin: "It's always darkest before the dawn".
ReplyDeleteHe was right.
You'll pass through the hard times, and smile again. Even though you *feel* like your love and support isn't enough for Michael - it is! Even if he can't communicate it to you, I'm sure that it means everything to him.
If you were my mom and I were in Michael's place, I'd be praying that you'd take some time away to regenerate with the comfort of knowing that your happiness is my happiness.
You, Michael, and all of your loved ones are in my thoughts and prayers.
I am praying for your family and Michael. This is a tough situation, but I know there is a way out. I know that it won't end like this. Have hope.
ReplyDeleteI hope that someone will find a facility for Michal soon.
ReplyDeleteI pray that God will send you comfort and peace as you wait to find the right facility to help Michael. I pray that you will seek Him as you go through this valley and that you will be surrounded by His love even in the darkest moments.
ReplyDeleteNever feel guilty about doing what is necessary for your own physical and mental health. You are doing the best you can out of love for your precious Michael and sometimes that means stepping back and seeking help elsewhere. You are in my heart.
ReplyDeleteI am praying for your family and Michael. Brain injury is not the end. God bless you and be with you. Please don't be afraid to ask for what you need.
ReplyDeleteYour son is beautiful.
Much love and prayers,
H
Your story, your son and your family are beautiful. Your love for each other is so inspiring - that is what true love really is. God bless.
ReplyDeleteSending all my love, support, and the most powerful prayers I can muster your way. Your family's love and dedication to your son is inspiring and amazing.
ReplyDeleteSending love, support and prayers! Keep your head up high--even in the darkest hours.
ReplyDeleteA beautiful family. Full of love. Keep strong-Michael feels it and love will pull him through. I hope you find a faculty that can offer him the help and support you all need very soon. Sending prayers and light to you. Keep strong and feel the love. The world is with you. x
ReplyDeleteI'm so sorry to hear that such a tragedy has stuck you and your family, your story is heartbreaking, and i dont think anyone could comprehend the pain and emotional strain you are going through. But I'm sure that your son will understand and theres no reason for you to feel as though your turning your back on him because your not. All the effort, time and love you have put in to help and comfort him will be sensed. Its okay to take some time out, the situation your in is upsetting and stressful, the time out will allow you to come back stonger and support him better.
ReplyDeleteWishing you all the strength in the world...
beloved michael and family : shabbat shalom blessings of peace hope faith mercy love from mount zion !!! drop a love bomb brought me here to help you and encourage your family - spiritualy - the bible - james c. 5 vs. 14 - 21 but vs. 14 : is any SICK among you ??? let him CALL for the ELDERS of the church ; and let them PRAY over HIM ( michael ) ANIONTING him with *** OIL **** in the name of the LORD !!! please read the rest !!! aniont michael with pure virgin olive oil on his forehead , our prayers go up to god and his 24 elders that do god*s work as incense ( rev. c. 4 and 5 all ) , our prayers are heard from god , he is faithfull , if you believe ( also pray or read isaiah c. 53 all to michael ) !!! through suffering we come to god and his presense !!! please take my advice , i am a man of god - malachi c. 3 and 4 all , bless you and your family , and all that posted here to show their support for your precious son , glory to god through christ , god is love - to love others amen shalom peace bye !!!
ReplyDelete